Alone we’re rare Together we’re strong

We're glad you're here!

At HSP PLS Canada our goal and mission is to raise awareness about HSP and PLS. We wish to provide a community of support for those living with HSP or PLS, and provide any news regarding conferences and research.

Melanie WadeHSP PLS Canada, Founder
Photo representing the mission for HSP PLS Canada
Doctors researching for HSP PLS Canada

Research is Our

Only Hope

HSP PLS Canada knows many of the riddles regarding
the complicated biochemistry of these diseases. Many
HSP genes have now been discovered as well as a gene
for PLS. Animal models for these disorders have been
developed. They will enable investigators to further
uncover the biochemical processes that cause nerve
degeneration and identify and test therapy targets.

An increased focus on our diseases is timely and critical.
There is indeed reason to hope for treatments and
therapies in coming years that will restore significant
function to people affected by SPF diseases. And,
uncovering more of these riddles may also lead to
important findings for related conditions such as ALS,
spinal cord injury and Alzheimer’s Disease.

Support Resources

If you or someone in your family has recently been
diagnosed with HSP or PLS, you may be feeling very
overwhelmed. It is difficult news to hear, and sometimes
you may not know how to make sense of all the new
information you’re receiving. HSP PLS Canada knows
what you are going through.

There are many resources available to you,
and you are not alone.

People from HSP PLS Canada banding together
HSP AFFECTS
30
PLS AFFECTS
90

People in Every Million

Learn More

Our Recent Writings

Biography

Let’s Talk About This Covid Lockdown

Lonely, isolated, scared, afraid, painful, stressful these are all words I have heard over the past several months of this pandemic. At first I felt…
Biography

Life With HSP

My name is Melanie, I am a child of God, Wife, Mother, Nan, Sister, Aunt, Great Aunt and Cousin. I have HSP with gene type…
Biography

Support Disabled Parents

In 2004-2005, I lived in Toronto! I use to walk, take the subway, and bus to work everyday. That’s when I first noticed that my…

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